Dear community,
The Department of Health and Human Services (HHS) recently announced cuts that have eliminated the Centers for Disease Control’s (CDC) Epilepsy Program staff. This comes as part of a large-scale Reduction in Workforce, not only at the CDC, but also other HHS agencies like the National Institute of Neurological Disorders and Stroke (NINDS) and the Food and Drug Administration (FDA) who play critical roles in epilepsy research, medical device review, and public health initiatives.
These decisions reflect a broader shift in federal priorities that may feel overwhelming and unsettling. Please know, EFMN remains unwavering in its commitment to our mission and community. In the face of uncertainty, we will continue to provide personal support services, connection, education, and advocacy for those impacted by epilepsy, and we are committed to strengthening local resources. Our mission is to ensure that Minnesota’s epilepsy community has what they need, no matter the federal landscape, and we will continue to be a steadfast source of support and hope for those impacted by epilepsy.
While the complexities at the federal level are significant, these cuts highlight the unpredictable nature of federal funding and its profound impact on our community. The elimination of the CDC Epilepsy Program team and the uncertainty around the future of the program will undoubtedly disrupt critical research and will halt progress in preventing, treating, and managing epilepsy.
At EFMN, we are working with the Epilepsy Foundation of America (EFA) to advocate for the restoration of the CDC’s epilepsy program staff and to protect funding for the program moving forward, ensuring that epilepsy remains a priority at the national level. We are taking immediate action through close work with lawmakers, as well as providing you with resources to contact legislators, raise awareness, and amplify our efforts.
Here’s how you can help support this important work:
- Advocate: Contact your legislators using our tools and push for the restoration of CDC epilepsy staff and protection of funding.
- Connect: If you or someone you know is living with epilepsy and needs personalized support, our dedicated Outreach Managers are here to assist with any questions or help navigating these changes. Connect by emailing clientsupport@efmn.org or calling 651-287-2300.
- Donate: Your support is vital to advancing key advocacy efforts, such as supporting the Minnesota Department of Health epilepsy program proposed legislation (Bills SF 1538 and HF 1765), and ensuring EFMN remains a reliable, local resource for the epilepsy community.
While these federal cuts are unsettling, EFMN’s commitment to supporting Minnesota’s epilepsy community is unwavering. Together, we will ensure that the needs of those living with epilepsy are heard, addressed, and met with the care and resources they deserve.
Thank you for your continued support.
Sincerely,
Jenna Carter
Executive Director
Epilepsy Foundation of Minnesota